“To heighten awareness of EB and
to be a source of support and
comfort for EB families”

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News, articles and videos raising awareness of EB

March 2008 InStyle

Oprah on "You Tube"

WireImage

 EBMRF Benefit

Epidermolysis Bullosa (EB) Awareness Celebrities Chip In (Video)

EBMRF Dinner in Honor of Ken Paves' Big Give
March 2008 ABC Celebs create charity cards (video)
March 2008 Access Hollywood Courteney Cox Calls On Star Friends For Great Cause
August 2005 TLC PenFinancial Credit Union Donates $1,200
July 2005 Access Hollywood Courteney's Cause - feature story about the fundraising efforts of Courteney Cox.
June 2005 Guelph Record Pain and Uncertainty - Article by Colin Hunter of the Guelph Record Newspaper on Alex
June 2005 TLC The Boy Who's Skin Fell Off- A documentary on the life of Jonny Kennedy

Videos on the web...

EB- Butterfly Children #1 Eb - Butterfly Children #2 EB - Butterfly Children #3

Radio documentary

Featuring Natalie's daughter, Tatum